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Research article:
The effects of caring for young children with developmental disabilities on mothers’ health and healthcare use: analysis of primary care data in the Born in Bradford cohort
Reference:
Sarah C. Masefield; Stephanie L. Prady; Trevor A. Sheldon; Neil Small; Stuart Jarvis; Kate E. Pickett(2021) The effects of caring for young children with developmental disabilities on mothers’ health and healthcare use: analysis of primary care data in the Born in Bradford cohort . Journal of Developmental and Physical Disabilities, doi:
- Link to fulltext article
- Abstract
- We explored the association between caregiving for preschool children with developmental disabilities and maternal health and healthcare use using linked primary care and Born in Bradford birth cohort data. Adjusting for pre-natal health, healthcare use and socioeconomic status, mothers who were caregivers were more likely than other mothers to have symptoms of psychological distress (odds ratio 1.24; 95% CI 1.01, 1.53), exhaustion (1.42; 1.12, 1.80) and possibly head and musculoskeletal pain (1.18; 0.97, 1.43). Despite the higher prevalence of symptoms, they did not access healthcare services more and may have sought healthcare for psychological distress less often (0.64; 0.40, 1.02). In general, socioeconomic deprivation was associated with worse health. Pakistani ethnicity (versus white British) and pre-natal consultation were strongly associated with higher post-natal consultation rates. Prenatal ill health, healthcare use and socioeconomic status are important factors in the detection of postnatal ill health via primary care services. If caregiver burden and the risk of under-detecting (and thus under treating) caregiver ill health is not addressed during the preschool period health inequalities between caregivers and other mothers and their families may persist and grow. The health of mothers of young disabled children, in particular their unmet health needs, warrants more attention in research and clinical practice.
- Author for correspondence
- Sarah C. Masefield
- Email for correspondence
- sarah.masefield@york.ac.uk
Code list: res175: fatigue
47 codes in list
| Code | Coding system | Description | Entity type | List name | |||
|---|---|---|---|---|---|---|---|
| 1682 | Read | Fatigue | symptom | res175: fatigue | |||
| 1683 | Read | Tired all the time (& [C/O -]) | symptom | res175: fatigue | |||
| 1686 | Read | Heavy legs | symptom | res175: fatigue | |||
| 1687 | Read | Heavy feeling | symptom | res175: fatigue | |||
| 168Z. | Read | Tiredness symptom NOS | symptom | res175: fatigue | |||
| L168. | Read | Fatigue during pregnancy | diagnostic | res175: fatigue | |||
| L1680 | Read | Fatigue during pregnancy unspecified | diagnostic | res175: fatigue | |||
| L1681 | Read | Fatigue during pregnancy - delivered | diagnostic | res175: fatigue | |||
| L1682 | Read | Fatigue during pregnancy - delivered with postnatal complication | diagnostic | res175: fatigue | |||
| L1683 | Read | Fatigue during pregnancy - not delivered | diagnostic | res175: fatigue | |||
| L1684 | Read | Fatigue during pregnancy with postnatal complication | diagnostic | res175: fatigue | |||
| L168z | Read | Fatigue during pregnancy NOS | diagnostic | res175: fatigue | |||
| R007. | Read | [D]Malaise and fatigue | symptom | res175: fatigue | |||
| R0070 | Read | [D]Malaise | symptom | res175: fatigue | |||
| R0071 | Read | [D]Fatigue | symptom | res175: fatigue | |||
| R0072 | Read | [D]Asthenia NOS | symptom | res175: fatigue | |||
| R0073 | Read | [D]Lethargy | symptom | res175: fatigue | |||
| R0074 | Read | [D]Postviral (asthenic) syndrome | symptom | res175: fatigue | |||
| R0075 | Read | [D]Tiredness | symptom | res175: fatigue | |||
| R007z | Read | [D]Malaise and fatigue NOS | symptom | res175: fatigue | |||
| Ua150 | Read | Tired | symptom | res175: fatigue | |||
| X761D | Read | Tedium vitae | symptom | res175: fatigue | |||
| X76Ac | Read | Tires quickly | symptom | res175: fatigue | |||
| X76Ad | Read | Tired on least exertion | symptom | res175: fatigue | |||
| X76Ae | Read | Exhaustion | symptom | res175: fatigue | |||
| X76Af | Read | Quickly exhausted | symptom | res175: fatigue | |||
| X76Ag | Read | Exhausted on least exertion | symptom | res175: fatigue | |||
| X76qY | Read | Muscle fatigue | symptom | res175: fatigue | |||
| Xa96S | Read | Tiredness | symptom | res175: fatigue | |||
| XabDw | Read | Symptom Assessment Scale - fatigue score | symptom | res175: fatigue | |||
| XaBEA | Read | [D] Post polio exhaustion | symptom | res175: fatigue | |||
| XaEJ8 | Read | Accommodative fatigue | diagnostic | res175: fatigue | |||
| XaEXl | Read | Feeling tired | symptom | res175: fatigue | |||
| XaPeC | Read | Activity management for chronic fatigue syndrome | symptom | res175: fatigue | |||
| XaPom | Read | Mild chronic fatigue syndrome | diagnostic | res175: fatigue | |||
| XaPon | Read | Moderate chronic fatigue syndrome | diagnostic | res175: fatigue | |||
| XaPoo | Read | Severe chronic fatigue syndrome | diagnostic | res175: fatigue | |||
| XaR7C | Read | Referral to chronic fatigue syndrome specialist team | symptom | res175: fatigue | |||
| XaRAz | Read | Referral for chronic fatigue syndrome activity management | symptom | res175: fatigue | |||
| XE0qj | Read | Tiredness symptom | symptom | res175: fatigue | |||
| XE0qk | Read | TATT - Tired all the time | symptom | res175: fatigue | |||
| XM06l | Read | Malaise and fatigue | symptom | res175: fatigue | |||
| XM09R | Read | Senile exhaustion | symptom | res175: fatigue | |||
| XM0D3 | Read | Fatigue - symptom | symptom | res175: fatigue | |||
| XM0D5 | Read | C/O - "tired all the time" | symptom | res175: fatigue | |||
| XM0yx | Read | Asthenia [D] | symptom | res175: fatigue | |||
| XM1AV | Read | Asthenia | symptom | res175: fatigue |
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