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Research article:
The effects of caring for young children with developmental disabilities on mothers’ health and healthcare use: analysis of primary care data in the Born in Bradford cohort
Reference:
Sarah C. Masefield; Stephanie L. Prady; Trevor A. Sheldon; Neil Small; Stuart Jarvis; Kate E. Pickett(2021) The effects of caring for young children with developmental disabilities on mothers’ health and healthcare use: analysis of primary care data in the Born in Bradford cohort . Journal of Developmental and Physical Disabilities, doi:
- Link to fulltext article
- Abstract
- We explored the association between caregiving for preschool children with developmental disabilities and maternal health and healthcare use using linked primary care and Born in Bradford birth cohort data. Adjusting for pre-natal health, healthcare use and socioeconomic status, mothers who were caregivers were more likely than other mothers to have symptoms of psychological distress (odds ratio 1.24; 95% CI 1.01, 1.53), exhaustion (1.42; 1.12, 1.80) and possibly head and musculoskeletal pain (1.18; 0.97, 1.43). Despite the higher prevalence of symptoms, they did not access healthcare services more and may have sought healthcare for psychological distress less often (0.64; 0.40, 1.02). In general, socioeconomic deprivation was associated with worse health. Pakistani ethnicity (versus white British) and pre-natal consultation were strongly associated with higher post-natal consultation rates. Prenatal ill health, healthcare use and socioeconomic status are important factors in the detection of postnatal ill health via primary care services. If caregiver burden and the risk of under-detecting (and thus under treating) caregiver ill health is not addressed during the preschool period health inequalities between caregivers and other mothers and their families may persist and grow. The health of mothers of young disabled children, in particular their unmet health needs, warrants more attention in research and clinical practice.
- Author for correspondence
- Sarah C. Masefield
- Email for correspondence
- sarah.masefield@york.ac.uk
Code list: res175: headache
114 codes in list
| Code | Coding system | Description | Entity type | List name | |||
|---|---|---|---|---|---|---|---|
| 1474 | Read | H/O: migraine | diagnostic | res175: headache | |||
| 1B1G. | Read | Headache (& [C/O]) | diagnostic | res175: headache | |||
| 1B1G0 | Read | Sinus headache | diagnostic | res175: headache | |||
| 1B1G1 | Read | Viral headache | diagnostic | res175: headache | |||
| 1BA.. | Read | Headache site | diagnostic | res175: headache | |||
| 1BA2. | Read | Generalised headache | diagnostic | res175: headache | |||
| 1BA3. | Read | Unilateral headache | diagnostic | res175: headache | |||
| 1BA3. | Read | One sided headache | diagnostic | res175: headache | |||
| 1BA4. | Read | Bilateral headache | diagnostic | res175: headache | |||
| 1BA5. | Read | (Frontal headache) or (pain in sinuses) | diagnostic | res175: headache | |||
| 1BA6. | Read | Occipital headache | diagnostic | res175: headache | |||
| 1BA6. | Read | Occipital headache | diagnostic | res175: headache | |||
| 1BA7. | Read | Parietal headache | diagnostic | res175: headache | |||
| 1BA7. | Read | Parietal headache | diagnostic | res175: headache | |||
| 1BA8. | Read | Temporal headache | diagnostic | res175: headache | |||
| 1BA8. | Read | Temporal headache | diagnostic | res175: headache | |||
| 1BAZ. | Read | Headache site NOS | diagnostic | res175: headache | |||
| 1BAZ. | Read | Headache site NOS | diagnostic | res175: headache | |||
| 1BB.. | Read | Headache character | diagnostic | res175: headache | |||
| 1BB1. | Read | Aching headache | diagnostic | res175: headache | |||
| 1BB2. | Read | Throbbing headache | diagnostic | res175: headache | |||
| 1BB3. | Read | Shooting headache | diagnostic | res175: headache | |||
| 1BB4. | Read | Morning headache | diagnostic | res175: headache | |||
| 1BB5. | Read | Heavy head | symptom | res175: headache | |||
| 1BBZ. | Read | Headache character NOS | diagnostic | res175: headache | |||
| 61461 | Read | Headache caused by oral contraceptive pill | diagnostic | res175: headache | |||
| E2781 | Read | Headache: [muscular] or [tension] | diagnostic | res175: headache | |||
| F26.. | Read | Migraine | diagnostic | res175: headache | |||
| F260. | Read | Migraine with aura | diagnostic | res175: headache | |||
| F261. | Read | Common migraine | diagnostic | res175: headache | |||
| F2610 | Read | Atypical migraine | diagnostic | res175: headache | |||
| F2611 | Read | Sick headache | diagnostic | res175: headache | |||
| F261z | Read | Common migraine NOS | diagnostic | res175: headache | |||
| F262. | Read | Migraine variants | diagnostic | res175: headache | |||
| F2620 | Read | Migrainous neuralgia | diagnostic | res175: headache | |||
| F2620 | Read | Cluster headache syndrome | diagnostic | res175: headache | |||
| F2623 | Read | Basilar artery migraine | diagnostic | res175: headache | |||
| F2623 | Read | Basilar migraine | diagnostic | res175: headache | |||
| F2624 | Read | Ophthalmic migraine | diagnostic | res175: headache | |||
| F262z | Read | Migraine variant NOS | diagnostic | res175: headache | |||
| F26y. | Read | Other forms of migraine | diagnostic | res175: headache | |||
| F26y0 | Read | Hemiplegic migraine | diagnostic | res175: headache | |||
| F26y1 | Read | Ophthalmoplegic migraine | diagnostic | res175: headache | |||
| F26y3 | Read | Complicated migraine | diagnostic | res175: headache | |||
| F26yz | Read | Other forms of migraine NOS | diagnostic | res175: headache | |||
| F26z. | Read | Migraine NOS | diagnostic | res175: headache | |||
| F2900 | Read | Headache after: [lumbar puncture] or [myelogram] | diagnostic | res175: headache | |||
| Fyu53 | Read | [X]Other migraine | diagnostic | res175: headache | |||
| Fyu54 | Read | [X]Other specified headache syndromes | diagnostic | res175: headache | |||
| Fyu5A | Read | [X]Vascular headache | diagnostic | res175: headache | |||
| Fyu5B | Read | [X]Drug-induced headache | diagnostic | res175: headache | |||
| K5A22 | Read | Menopausal headache | diagnostic | res175: headache | |||
| L384. | Read | Obstetric spinal and epidural anaesthesia-induced headache | diagnostic | res175: headache | |||
| L3840 | Read | Spinal and epidural anaesthesia-induced headache during pregnancy | diagnostic | res175: headache | |||
| L3841 | Read | Spinal and epidural anaesthesia-induced headache during the puerperium | diagnostic | res175: headache | |||
| L387. | Read | Spinal and epidural anaesthesia-induced headache during labour and delivery | diagnostic | res175: headache | |||
| R040. | Read | Headache | diagnostic | res175: headache | |||
| R0400 | Read | Facial pain | diagnostic | res175: headache | |||
| X007a | Read | Chronic paroxysmal hemicrania | diagnostic | res175: headache | |||
| X007b | Read | Atypical cluster headache | diagnostic | res175: headache | |||
| X007c | Read | Chronic post-traumatic headache | diagnostic | res175: headache | |||
| X007d | Read | Low pressure headache | diagnostic | res175: headache | |||
| X007e | Read | Post dural puncture headache | diagnostic | res175: headache | |||
| X007f | Read | Headache following myelography | diagnostic | res175: headache | |||
| X007h | Read | Ice-pick headache | diagnostic | res175: headache | |||
| X007h | Read | Idiopathic stabbing headache | diagnostic | res175: headache | |||
| X007i | Read | External compression headache | diagnostic | res175: headache | |||
| X007I | Read | Headache disorder | diagnostic | res175: headache | |||
| X007J | Read | Migraine with typical aura | diagnostic | res175: headache | |||
| X007K | Read | Migraine with prolonged aura | diagnostic | res175: headache | |||
| X007L | Read | Familial hemiplegic migraine | diagnostic | res175: headache | |||
| X007M | Read | Non-familial hemiplegic migraine | diagnostic | res175: headache | |||
| X007N | Read | Acephalgic migraine | diagnostic | res175: headache | |||
| X007N | Read | Migraine aura without headache | diagnostic | res175: headache | |||
| X007o | Read | Headache associated with substance abuse or withdrawal | diagnostic | res175: headache | |||
| X007O | Read | Retinal migraine | diagnostic | res175: headache | |||
| X007p | Read | Hangover from alcohol | diagnostic | res175: headache | |||
| X007Q | Read | Alternating hemiplegia of childhood | diagnostic | res175: headache | |||
| X007R | Read | Status migrainosus | diagnostic | res175: headache | |||
| X007S | Read | Migraine with ischaemic complication | diagnostic | res175: headache | |||
| X007T | Read | Muscular headache | diagnostic | res175: headache | |||
| X007T | Read | Muscular headache | diagnostic | res175: headache | |||
| X007U | Read | Episodic tension-type headache | diagnostic | res175: headache | |||
| X007U | Read | Episodic tension-type headache | diagnostic | res175: headache | |||
| X007V | Read | Chronic tension-type headache | diagnostic | res175: headache | |||
| X007V | Read | Chronic tension-type headache | diagnostic | res175: headache | |||
| X007W | Read | Episodic cluster headache | diagnostic | res175: headache | |||
| X007X | Read | Chronic cluster headache | diagnostic | res175: headache | |||
| X007Y | Read | Chronic cluster headache unremitting from onset | diagnostic | res175: headache | |||
| X007Z | Read | Chronic cluster headache evolved from episodic cluster headache | diagnostic | res175: headache | |||
| Xa07H | Read | Migraine - menstrual | diagnostic | res175: headache | |||
| XaIsz | Read | Benign coital headache | diagnostic | res175: headache | |||
| XaJLO | Read | Migraine prophylaxis | diagnostic | res175: headache | |||
| XaLSP | Read | Medication overuse headache | diagnostic | res175: headache | |||
| XaMIU | Read | Increased frequency of headaches | diagnostic | res175: headache | |||
| XaNTh | Read | Referral to headache special interest general practitioner | test | res175: headache | |||
| XaNTj | Read | Seen by general practitioner with special interest in headache | test | res175: headache | |||
| XaQZd | Read | Chronic headache disorder | diagnostic | res175: headache | |||
| XaXkr | Read | Migraine induced by oestrogen contraceptive | diagnostic | res175: headache | |||
| XaXkv | Read | H/O migraine with aura | diagnostic | res175: headache | |||
| XaXpZ | Read | Infrequent episodic tension-type headache | diagnostic | res175: headache | |||
| XaXpZ | Read | Infrequent episodic tension-type headache | diagnostic | res175: headache | |||
| XaXrD | Read | Paroxysmal hemicrania | diagnostic | res175: headache | |||
| XaXsc | Read | Trigeminal autonomic cephalalgia | diagnostic | res175: headache | |||
| XaXsF | Read | Frequent episodic tension-type headache | diagnostic | res175: headache | |||
| XaXsF | Read | Frequent episodic tension-type headache | diagnostic | res175: headache | |||
| XE0rh | Read | Headache | diagnostic | res175: headache | |||
| XE0s6 | Read | Frontal headache | diagnostic | res175: headache | |||
| XE15e | Read | Headache following lumbar puncture | diagnostic | res175: headache | |||
| XE187 | Read | (Cluster headaches) or (migrainous neuralgia) or (migraine NOS) | diagnostic | res175: headache | |||
| XE1Yl | Read | Stress headache | diagnostic | res175: headache | |||
| XE1Yl | Read | Tension-type headache | diagnostic | res175: headache | |||
| XE2rs | Read | Pain in head NOS | diagnostic | res175: headache | |||
| XM0CV | Read | C/O - a headache | diagnostic | res175: headache |
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